The Multiple Sclerosis Manifesto

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The Multiple Sclerosis Manifesto

SKU# 9781932603446

Action to Take, Principles to Live By

Author: Julie Stachowiak PhD


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An empowering guide for increasing your quality of life, navigating challenges, and embracing opportunities

Julie Stachowiak, PhD is the Guide to Multiple Sclerosis. As an epidemiologist who is also a person living with MS, Julie has an in-depth understanding about the scientific developments around MS and the personal side of living with a chronic illness. In the Multiple Sclerosis Manifesto, Julie shows you how to create your own personal MS manifesto and provides practical tools and reassurance to help you Ïget betterÓ in your life, from optimizing medical care and managing symptoms, to strengthening relationships, dealing with emotions, and embracing activism.

Committed to making the hard parts easier and the good parts last longer, Julie show you how to figure out what you need, identify opportunities, understand challenges, and get your needs met. With the Multiple Sclerosis Manifesto, youÌll know how to:

  • Create your personal mission statement
  • Protect yourself by learning more about medications you are currently taking or considering to take
  • Determine what you want in a doctor and how to evaluate the doctor you have
  • Celebrate your successes√õand why it√ås essential that you do
  • Make disclosing your MS status to friends, family and others easier
  • Find a support group

Product Details 

  • Publication Date December 22, 2009
  • Page Count 338
  • Product Form Paperback / softback
  • ISBN 13 9781932603446
  • EISBN 9781935281726

About The Author(s) 

"Julie Stachowiak is the Guide to multiple sclerosis for (the Internet property owned by the New York Times). She writes articles for the website ( the goal of which is to build a comprehensive Internet source of MS information. In that role she has been called by Josie Byzek of New Mobility Magazine ""the best MS writer on the web."" |

Julie has her doctorate in International Disease Control and Prevention from Johns Hopkins University Bloomberg School of Public Health, two Masters from Columbia University, one from the Columbia University School of Public Health in International Population and Family Health Specialization the other from Columbia University School of International and Public Affairs in Human Rights and International Law/Soviet Studies Specializations. |

In 1993 she co-founded one of the first non-governmental AIDS/HIV organizations in Russia. AIDS infoshare has grown to be the most influential non-governmental organization dealing with the HIV epidemic in Russia ( and continues to fight to get information on the disease into the right hands. It was this work that informed her embrace of her own disease and her political stance on living with a chronic condition. |

She is the author of Demos Health's The Multiple Sclerosis Manifesto: Action to Take, Principles to Live By.


Table of Contents 

"Proceed With Confidence
Be An MS Expert
Put Your Symptoms In Their Place. Make Your Doctor Work For You
Don't Let Treatment Just Happen
Go ""Off-Road"" Responsibly
Be Prepared
Create Health In New Places
Reform Relationships On Your Terms
Cooperate With Your Emotions
Be Your Own Advocate
Get ""In The Mix""
Seek Inspiration."

Editorial Review(s) 

Winner of Foreword Reviews 2009 Book of the Year Award!

"A newly diagnosed person with MS who is shocked and feels fully unaware of what to expect will find the book very valuable...sends a message of positivism and audacity." - MSCare (online)

"This is a call-to-arms for those living with multiple sclerosis (MS) to take control of their lives and be empowered by someone living with MS. Stachowiak (author of the MS pages on takes the reader through the basics of the condition, outlining what types of MS there are and the symptoms, treatment, and professional care available. She blends that information with the practical and sometimes intangible aspects of emotional health and enjoying life. With a conversational but authoritative voice, this a positive joy to read and work through. In each of the 12 chapters are brief texts explaining how readers can Do Your Best,' "Know Your Stuff,' 'Make It Better,' and 'Take Charge.' None of the concepts covered here are new, but it is refreshing and powerful to have them all gathered in one text. One downside: Some of the chapter headings are unclear.Verdict This is an excellent overview of the current state of MS knowledge, coupled with empowering tools for those living with it. Patrons could use it as a launching pad to continue research on their own."-Elizabeth J. Eastwood, Los Alamos P.L. Syst. NM, Library Journal, January 2010

"I wish this book was around when I was first diagnosed with MS. It is straightforward, honest, and practical. A must for anyone living with MS."-Amelia Davis, President of MS Friends, and author of My Story: A Photographic Essay on Life with Multiple Sclerosis

"The Multiple Sclerosis Manifesto is a significant resource for people living with MS. Dr. Stachowiak has drawn on her own experiences with MS in providing a very helpful resource to others who must navigate the real-world to address challenges, barriers, and opportunities. It also demonstrates how people can address these issues individually and collectively to improve the world for themselves and others."-David Chatel, Executive Vice President of Advocacy, National Multiple Sclerosis Society

"Delivers a declaration of war on MS and arms the MS community with an arsenal of pre-emptive strikes encouraging patients to take control of their illness-fully-informed and with dignity. This is the best damn discussion for people with MS and their family and friends. With the Manifesto in hand, hold a mirror up to your MS-self and see clearly how to tactically push back against this insidious disease."-Jeffrey N. Gingold, author of the award-winning book, Facing the Cognitive Challenges of Multiple Sclerosis and Mental Sharpening Stones: Manage the Cognitive Challenges of Multiple Sclerosis

"Issues are comprehensively addressed. Her academic credentials and status as someone with multiple sclerosis make her uniquely qualified to write about this complicated disease with expert knowledge and great sensitivty." - Caphis Consumer Connection Newsletter of the Medical Library Association