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Perinatal and Pediatric Bereavement in Nursing and Other Health Professions

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Perinatal and Pediatric Bereavement in Nursing and Other Health Professions

SKU# 9780826129260


  • Beth Perry Black PhD, RN
  • Patricia Moyle Wright PhD, CRNP, ACNS-BC
  • Rana Limbo PhD, RN, CPLC, FAAN
AJN 2016 Book of The Year First Place Winner
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[This] is a story of love, hope, and healing. There are 18 chaptersÖcovering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they can go on living. ÖThis book is a collection of clinical wisdom, theoretical knowledge, and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement."

óBetty Ferrell, PhD, MA, RN, FAAN, FPCN, CHPN

From the Foreword

This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal, neonatal, and pediatric death and its focus on the nurses and other health care providers who provide care to those involved.

Contributors disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families regarding their experiences and needs. The book provides both novice and experienced scholars of perinatal and pediatric bereavement with a strong foundation of current knowledge. With clinical interventions derived from research, the book enhances the expertise of clinicians caring for bereaved women and their families. It includes case studies, interview excerpts, graphics, and review questions to illustrate key points, and summaries demonstrating how theory is translated to clinical practice and informs research. Chapters provide objectives, references, and suggestions for additional study. The book is also a valuable study aid for students
preparing for the Pediatric Loss Certification (NBCHPN) exam.


  • Provides high-level but accessible information from renowned scholars in perinatal and pediatric loss
  • Disseminates the newest theoretical frameworks that can be used to create interventions and develop research.
  • Includes case studies demonstrating how theory is applicable to research and practice
  • Facilitates critical thinking with different and sometimes competing perspectives
  • Serves as a valuable resource for Pediatric Loss Certification (NBCHPN) preparation

Product Details 

  • Publication Date September 10, 2015
  • Page Count 404
  • Product Form Paperback / softback
  • ISBN 13 9780826129260
  • EISBN 9780826129277

About The Author(s) 

Beth Perry Black, PhD, RN, is an associate professor of nursing at the University of North Carolina at Chapel Hill. She teaches a graduate course, Death, Dying, and Care of the Bereaved, for nursing and social work students, an undergraduate course on nursing inquiry and evidence-based practice, and two graduate writing courses. She has published numerous articles on perinatal loss, several monographs, and book chapters; and authored a book on professional nursing practice. Dr. Black has had National Institutes of Health (NIH) funding twice to study perinatal loss and palliative care and recently completed a study on reproductive loss in lesbian couples.

Patricia Moyle Wright, PhD, CRNP, CNS, CHPN, CNE, has worked in hospice and palliative care for more than 20 years, beginning as a nursing assistant, later as a registered nurse, and now as a family nurse practitioner. She earned bachelor's and master's degrees in nursing from Misericordia University, Dallas, Pennsylvania, and a PhD in nursing from Loyola University, Chicago, Illinois. Dr. Wright is a board-certified adult health clinical nurse specialist and family nurse practitioner. She is also a certified hospice and palliative nurse (CHPN) and a certified nurse educator (CNE).

Dr. Wright is an associate professor in the department of nursing at The University of Scranton. She teaches a number of graduate and undergraduate courses, including a course on end-of-life care. Dr. Wright has published numerous articles and book chapters on end-of-life issues, including grief and bereavement. Her most recent work is a coedited book, Perinatal and Pediatric Bereavement in Nursing and Other Health Professions (Springer Publishing), winner of an American Journal of Nursing Book of the Year Award.

Rana Limbo, PhD, RN, CPLC, FAAN, is the associate director and senior faculty consultant of ResolveThrough Sharing (RTS), Gundersen Health System, La Crosse, Wisconsin. She was the first coordinator of RTS, the premier international hospital-based perinatal bereavement program, which began in 1981. Dr. Limbo has written numerous articles, book chapters, two books, and is a frequent speaker on perinatal bereavement, guided participation, and relationship-based care She is a fellow of the American Academy of Nursing; an elected member of the International Work Group on Death, Dying, and Bereavement; and certified in perinatal loss care.

Table of Contents 

Foreword Betty R. Ferrell, PhD, MA, RN, FAAN, FPCN, CHPN



Kristen M. Swanson

1: My Absent Child: Cultural and Theoretical Considerations of Bereavement When a Child Dies

Patricia Moyle Wright, Rana Limbo, and Beth Perry Black

Addressing Culture: A First Step in Bereavement Care

Continuing Bonds: Re-Examining How Attachments Are Maintained After Death

Posttraumatic Growth in Response to Loss

Concepts Related to Bereavement Theories


2: Applying Theoretical Frameworks to Research in Perinatal Bereavement

Sarah Kye Price and Dalia El-Khoury

Attachment Theory

Psychodynamic Theory

Interpersonal Theory

Cognitive Stress Theory

Feminist Theory

Emerging Perspectives: Trauma-Informed and Strengths-Based Approaches to Research


Case Study

Focus Questions

3: Caregiving as a Theoretical Framework in Perinatal Palliative Care

Rana Limbo, Anthony Lathrop, and Jane Heustis

Brief Historical Overview

Identifying Families in Need of Services

Layered, Progressive News Versus Sudden, Unexpected Realization

PPC Research

The Importance of Caregiving

The Internal Working Model of Caregiving

Caregiving in Bereaved Parents

Clinical Guidelines: Caregiving in Perinatal Palliative Care

Birth and Advance Care Planning

Beginning the Journey With the Family

The Role of the PPC Team

Support During the Pregnancy



Case Study

Focus Questions


4: When an Expected Baby Dies: Maternal–Fetal Attachment in Context of Loss

Beth Perry Black

Theoretical Roots of Attachment and Bonding

Describing and Defining Women’s Relationship to the Developing Fetus

Narratives From Three Expectant Families With a Severe Fetal Diagnosis


Case Study

Focus Questions

5: The Pushing On Theory of Maternal Perinatal Bereavement

Patricia Moyle Wright

Pushing On

The Process of Maternal Perinatal Bereavement

Comparison With Other Models

Clinical Implications of the POT



Case Study

Focus Questions

6: When the Unthinkable Happens: A Mindfulness Approach to Perinatal and Pediatric Death

Joanne Cacciatore

Mindfulness Approaches


Concerns About the Mindfulness Approach to Traumatic Grief


Case Study

Focus Questions

7: Complicated Grief and Perinatal Loss

Patricia Moyle Wright

Defining CG

Grief and the DSM-5

CG and Perinatal Loss

Treating CG


Case Study

Focus Questions

8: Lesbians, Parenthood, and Reproductive Loss

Danuta M. Wojnar

LGBTQ Families in the United States

Human Desire to Become a Parent

Pregnancy Launching by Lesbian Couples

Miscarriage Experiences of Lesbian Couples


Case Study

Focus Questions

9: Early Pregnancy Loss During Adolescence

Sara Rich Wheeler and Marlene G. S. Sefton

Adolescent Growth and Development

Integrated Theory of Bereavement


Case Study

Focus Questions

Appendix 9.1: Bereavement Resources

Appendix 9.2: Tips for Talking With Adolescents Who Experienced a Pregnancy Loss

10: Understanding the Experience of Pregnancy Subsequent to a Perinatal Loss

Denise Côté-Arsenault and Joann O’Leary

Theoretical Perspectives of Pregnancy

Characteristics of Pregnancy After Loss

Interventions for Supporting Parents


Case Study

Focus Questions


Mary Muscari

11: Conceptual Approaches to Understanding Parental Grief After the Death of a Child

Margaret Shandor Miles

Definitions of Grief

Historical Literature About Parental Grief

Conceptualization Models of Grief

Parental Grief Models


Toward Conceptualizing the Grief of Parents


Case Study

Focus Questions

12: Theoretical Perspectives on Pediatric Palliative Care

Rose Steele and Kimberley Widger

Evolution of Pediatric Palliative Care

Standards and Principles of Practice

Models of Pediatric Palliative Care

Pediatric Palliative Care Specialization


Case Study

Focus Questions

13: Hope, Hopefulness, and Pediatric Palliative Care

Douglas L. Hill and Chris Feudtner

Theories of Hope and Hopeful Patterns of Thinking

Hope in Health and Health Care

Pediatric Palliative Care

Future Directions


Case Study

Focus Questions

14: Grieving the Traumatic Death of a Child

Wendy G. Lichtenthal, Geoffrey W. Corner, Corinne Sweeney, and Kailey E. Roberts

Psychological Responses to the Traumatic Loss of a Child

Theoretical Models of Adjustment

Cause of Death: Does It Matter?

Physical Health and Mortality

Risk Factors

Supporting Traumatically Bereaved Parents


Case Study

Focus Questions

15: Remembering the “Forgotten Bereaved”: Understanding and Caring for Siblings of Completed Suicide Victims

Rebecca Kabatchnick and Beth Perry Black

Completed Suicide and Its Aftermath: Background

Reviewing the Literature on Siblings of Completed Suicide Victims


Toward No Longer Shedding Tears Alone



Case Study

Focus Questions

16: Bereavement in Young Children With Siblings in Pediatric Palliative Care

Betty Davies, Camara van Breemen, Susan Poitras, and Eric Stephanson

The Long-Term Nature of PPC

Anticipatory Grief

The Model: Shadows in the Sun

Community Bereavement Resources


Case Study

Focus Questions

17: Supporting Grieving Children

Andy McNiel and Donna L. Schuurman

Definition of Terms

How Children Understand and Process Death

Understanding How Death Impacts Children’s Lives

What Grieving Children Need

Talking to Children About Death

Talking to Children About the Impending Death of Someone Close to Them

Sharing the News of Death With Children

Children’s Involvement in Funerals and Rituals

Cultural Issues Impacting Grieving Children, Teens, and Families


Case Study

Focus Questions

18: Moments Matter: Exploring the Evidence of Caring for Grieving Families and Self

Rana Limbo and Kathie Kobler


Relationship-Based Care

Professionals Caring for Bereaved Parents

Caregiver Suffering


Case Study

Focus Questions