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Palliative Care for Advanced Alzheimer's and Dementia

Guidelines and Standards for Evidence-Based Care

Editors

Gary Martin, PhD

Marwan Sabbagh, MD, FAAN

Description

2010 AJN Book of the Year Award Winner in both Gerontologic Nursing and Hospice and Palliative Care!

This book...provides important information on best practices and appropriate ways to care for a person with Alzheimer's and advanced dementia. Drs. Martin and Sabbagh have assembled a team of experts to help craft recommendations that should ultimately become standards that all professional caregivers adopt.

-Michael Reagan
Son of former President Ronald Reagan
President, Reagan Legacy Foundation

This book testifies that caregivers can have a monumental impact on the lives of persons with advanced dementia. Through specialized programming and a renewed effort toward patient-centered care, caregivers can profoundly enrich the quality of life for these persons. Providing guidelines for health care professionals, caregivers, and family members, this book introduces palliative care programs and protocols for the treatment of people with advanced dementia.

The book is designed to guide professional caregivers in meeting the needs of patients and their families, providing insight into the philosophy, assessment, planning, implementation, and evaluation measures involved in interdisciplinary palliative care. The chapter authors offer guidelines and standards of care based on contributions from nurses, physical therapists, social workers, dietitions, psychologists, family caregivers and pastors. An exhibit at the end of every chapter clearly articulates the standards of care appropriate for all advanced dementia facilities and health care staff.

This book helps caregivers:

Enhance the physiological, psychological, social, and spiritual well-being of the patient and the patient's family
Anticipate and meet the patient's basic human needs: hunger, thirst, body positioning, hygiene, continence, and management of any pain
Ensure that the patient's surroundings are safe, comfortable, and homelike
Address health care decisions that will support the patient's right to self-determination until the end of life

Contents

Acknowledgments xvii

Section I: Introduction to Professional Management of Advanced Dementia

1. Determining and Defining Advanced Dementia
2. The Continuum of Care
3. Caregiving

Section II: Protecting Dignity for the Patient with Dementia: Establishing an Environment and Caregiving Standards

4. Personhood
5. Creating the Optimal Milieu for Care
6. Managing Behavior Problems Associated with Advanced Dementia
7. Assessing and Addressing Pain
8. Ensuring the Appropriate Use of Medications in Advanced Dementia

Section III: Managing Activities of Daily Living

9. Eating and Nutrition
10. Dressing and Grooming
11. Bowel and Bladder Management
12. Ambulation and Mobility
13. Bathing

Section IV: Providing for Other HealthCare Needs

14. Activities Programming
15. Cultural Diversity
16. Healthcare Decisions for Advanced Dementia
17. The Continuum of Grief
18. Establishing Healthcare-Related Legal Options for the Vulnerable Patient

Glossary

Appendix A. Professional and Caregiver Resources for Advanced Dementia

Appendix B. Cultural Resources on the Web

Appendix C. Federal Guidelines for Providing Culturally Sensitive Care

Appendix D. Cultural Heritage Assessment Form

Index

Authors

Gary Martin, PhD, is a Licensed Clinical Psychologist and a Geriatrics and Long Term Care Specialist who is an owner of Integrated Geriatrics Behavioral Health Associates, PA, an incorporated behavioral health provider group in Scottsdale, AZ. Dr. Martin is the Clinical Director of several retirement and assisted living communities in the Greater Phoenix area. In addition, he is the Clinical Director of fourteen LTC-based specialized Behavior Units and eleven specialized Dementia programs in the Greater Phoenix area.

Marwan N. Sabbagh MD is the director of the Cleo Roberts Center for Clinical Research at Banner-Sun Health Research Institute. He is a geriatric neurologist and dementia specialist and one of the leading experts in Alzheimer's disease research nationally.

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