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Amyotrophic Lateral Sclerosis

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Amyotrophic Lateral Sclerosis

SKU# 9781932603064

Author: Robert G. Miller MD, Deborah Gelinas , Patricia O'Connor RN


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"ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden.Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS.

In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families.

Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations."

Product Details 

  • Publication Date October 01, 2004
  • Page Count 256
  • Product Form Paperback / softback
  • ISBN 13 9781932603064
  • EISBN 9781934559062

Table of Contents 

Acknowledgements, Preface
Section 1: Introduction
1. What is Amyotrophic Lateral Sclerosis?
2. The Diagnosis of ALS
3. Clinical Trials and Finding New Drugs for ALS
Section 2: Managing the Symptoms of ALS
4. A Multidisciplinary Approach to Care
5. Quality of Life and Psychosocial Issues
6. Treating the Symptoms of ALS
7. Nutrition and Swallowing
8. Speech, Communication, and Computer Access
9. Staying Mobile
10. Breathing and Sleeping
11. Thinking and Behavioral Changes
12. Palliative Care
Section 3: Resources
13. Finding a Cure and Improving Living with ALS: How the ALS Association Helps Patients and Families
14. The Muscular Dystrophy Association (MDA), ALS Division
15. Negotiating the Insurance Maze
Section 4: Appendix Resources, Index"

Editorial Review(s) 

"Want to know the anatomy and physiology underlying ALS? How the disease is diagnosed? What tests need to be done and what they mean? What clinical trials are all about? How to treat symptoms and live better? How to negotiate the insurance maze? You'll find answers to all these questions and more in this highly readable book" -- MDA/ALS Newsmagazine

"*****"All of [the authors] have extensive experience helping individuals affected by ALS and their families. Thus, the information they offer in the book is practical, realistic, and specific... All in all, Amyotrophic Lateral Sclerosis provides up-to-date, comprehensive information on living with ALS, which make it very useful for individuals affected by ALS and their families." -- About.com

"Informative, accurate and even reassuring, and will be valuable to readers internationally. In particular, the description of the major features and symptoms caused by ALS is excellent, and the methods of managing these problems are simply and lucidly explained... This book is an excellent and well thought-out example of an important resource that should be made available to all those suffering with ALS." - Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders

"The authors are all experts in the management of ALS, and this book will be much appreciated by patients and professionals alike."-- From the foreword by Lewis P. Rowland, MD, Neurological Institute, Columbia University Medical Center