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A Caregiver's Guide to Lewy Body Dementia

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A Caregiver's Guide to Lewy Body Dementia

SKU# 9781932603934

Author: Helen Buell Whitworth "MS, BSN", James Whitworth


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"Received a 2012 Caregiver Friendly Award from Today's Caregiver Magazine

Although Lewy Body Dementia is the second leading cause of degenerative dementia in the elderly, it is not well known or understood and is often confused with Alzheimer' Disease or Parkinson's. The Caregiver's Guide to Lewy Body Dementia is the first book ot present a thorough picture of what Lewy Body Dementia really is.

A Caregiver's Guide to Lewy Body Dementia is written in everyday language and filled with personal examples that connect to the readers' own experiences. It includes quick fact and caregiving tips for easy reference, a comprehensive resource guide, and a glossary of terms and acronyms.

This is the ideal resource for caregivers, family members, and friends of individuals seeking to understand Lewy Body Dementia."

Product Details 

  • Publication Date October 20, 2010
  • Page Count 312
  • Product Form Paperback / softback
  • ISBN 13 9781932603934
  • EISBN 9781935281443

About The Author(s) 

"Jim Whitworth's first wife was diagnosed with Lewy Body Dementia. Propelled by the lack of information on the disease that led to his wife's plunging into severe dementia and subsequent demise in 2003, he co-founded the now nationally known Lewy Body Dementia Association (http://lbda.org). ||In 2005, he married Helen Whitworth, a retired nurse with training and writing experience. Together they author The Thistle, the LBDA newsletter. They also teamed up to present classes on LBD to dementia care staff, volunteers, caregivers and the general public Riding the Roller Coaster with Lewy evolved from these classes. ||Lewy Body Dementia is the second leading cause of degenerative dementia in the elderly. If so many people have LBD, then one might think that it would be fairly well known. But it is not. It is only now that LBD has some acceptance as a ""real"" dementia and a stand-alone disease. Six years after founding their organization, the Whitworths still find people confusing LBD with Alzheimer's disease (AD). One of the goals of this book is to shed some light on that confusion.|"

Table of Contents 

1. What Is Lewy Body Dementia?
2. How Do I Find a Specialist and Get a Diagnosis I Can Trust?
3. Slowing the Progress of Dementia
4. Coping With Cognitive Symptoms
5. Coping With Motor Dysfunctions
6. Sleep Disorders and Lewy Body Dementia
7. What Are Perceptual Dysfunctions?
8. Drug Sensitivities and Adverse Reactions
9. Managing Acting-Out Behaviors
10. Coping With Autonomic Nervous System Dysfunctions
11. Coping With Urinary Tract Dysfunctions
12. How Do I Build a Health Care Team?
13. Managing Legal and Financial Issues
14. End-of-Life Issues
15. How Do I Take Care of Myself?
Online Resources

Editorial Review(s) 

"It is a valuable resource for caregivers, which include spouses and children as well as nurses and nurses' aides caring for people with dementia. Family doctors and neurologists also will benefit, as it uncovers a lot of questions that they should address during visits with these patients. This is a great resource for information about dealing with LBD, although it is not a substitute for physician advice on specific care issues, especially medications."-Doody's

“Lewy body dementia is a common cause of memory, motor, emotional and behavioral disturbance in the older adult, yet many people (including physicians) are unfamiliar with the signs, symptoms, and course of the illness. This lack of information can have devastating consequences on the patient, their family, and by extension their healthcare providers. Jim and Helen Whitworth have done an outstanding job not only of collecting a comprehensive compendium on all aspects of LBD, but they also have provided a personal touch with a moving compilation of anecdotes, stories, and quotes. I commend them for their efforts and will most certainly recommend this book as required reading for all my LBD patients and their families.”—James E. Galvin, MD, MPH, Professor of Neurology and Psychiatry, Director of Clinical Operations, Center of Excellence on Brain Aging. Director, Pearl Barlow Center for Memory Evaluation and Treatment, New York University Langone School of Medicine

“This book will make a difference in the lives of caregivers who help to manage the LBD patient with the ever constant fluctuations and the many issues that come with the disease.”—Irene Selak, a 5-year volunteer with the Lewy Body Dementia Association