End-Of-Life Stories

Crossing Disciplinary Boundaries

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End-Of-Life Stories

Crossing Disciplinary Boundaries

Editors

Donald E. Gelfand, PhD

Richard Raspa, PhD

Sherylyn H. Briller, PhD

Stephanie Myers Schim, PhD, RN, APRN, CNAA, BC

Description

End-of-life experiences are often viewed in terms of only one perspective such as medicine. In this volume, a variety of end-of life experiences are presented and each case is analyzed from a variety of disciplinary perspectives. These range across a broad array of the helping professions, and disciplines such as information, law and the social sciences.

The book provides a variety of narratives about end-of-life experiences contributed by members of the Wayne State University End-of-Life Interdisciplinary Project. Each of the narratives is then analyzed from several different disciplinary perspectives. These analyzes illustrate how specific end-of-life narratives can be viewed from different dimensions and helps students, researchers and practitioners see the important and varied meanings that end-of-life experiences have at the level of the individual, the family, and the community. The narratives include end-of-life experiences of individuals from a number of diverse backgrounds.

Contents

Introduction
Chapter One: The Model: Constructs, Story Domains, and Levels
Major Constructs: Narrative and Culture
Story Domains
Level of Analysis
Intersections
Chapter Two: Stories of Ron: Music to His Ears
Ron’s Story, M. Gunnell
A Narrative Response, R. Raspa
An Information Response, L. M. Baker
A Spiritual Response, D. E. Gelfand
Chapter Three: Stories of Ryan: Too Little Time
Ryan’s Story, K. M. Meert
A Physical Response, J. W. Finn
A Spiritual Response, E. E. Chapleski
A Narrative Response, R. Raspa
Chapter Four: Stories of Abby: An Ojibwa Journal
Abby’s Story, E. E. Chapleski
A Cultural Response, A. Z. Doorenbos
A Provider Response, R. Thomas
An Information Response, L. M. Baker
Chapter Five: Stories of Grace: Gifts and Givers
Grace’s Story, D. Deremo and K. M. Meert
A Spiritual Response, S. Myers Schim
A Provider Response, S. M. Popkin
A Life-Course Response, C. Thurston and K. M. Meert
Chapter Six: Stories of Avery: Living and Dying Well
Avery’s Story, S. Myers Schim
A Community Response, D. E. Gelfand
A Cultural Response, S. H. Briller
A Narrative Response, R. Raspa
Chapter Seven: Stories of Maggie: Family Dynamite
Maggie’s Story, K. Stever
An Economic Response, A. C. Goodman
A Provider Response, M. Gunnell
A Family Response, P. Wolf
Chapter Eight: Stories of Malika: Defining A Person
Malida’s Story, K. M. Meert
A Family Response, L. Harris
A Provider Response, A. Canady
A Cultural Response, S. H. Briller and A. Kabel
An Ethics Response, K. M. Meert
Chapter Nine: Stories of Sonny: Tattoos and Tolerance
Sonny’s Story, S. M. Popkin
A Cultural Response, S. H. Briller
A Legal Response, G. A. Cooney, Jr.
A Narrative Response, R. Raspa
Chapter Ten: Stories of Pearl: Surviving End-of-Life Care
Pearl’s Story, J. W. Finn
A Provider Response, R. Zalenski
An Economic Response, A. C. Goodman
A Provider Response, E. E. Chapleski
Chapter Eleven: Stories of Henry: Family Choices and Challenges
Henry’s Story, G. Cooney
A Narrative Response, R. Raspa
An Ethical Response, D. E. Gelfand
An Information Response, L. M. Baker
Chapter Twelve: Stories of Peter: Trouble with God and Family
Peter’s Story, A. Z. Doorenbos
A Provider Response, S. Myers Schim and R. Thomas
A Spiritual Perspective, A. Z. Doorenbos
A Narrative Perspective, R. Raspa
Chapter Thirteen Stories of Jim: Homeless and at Home
Jim’s Story, D. Deremo
A Policy Response, D. E. Gelfand and A. Z. Doorenbos
A Legal Response, G. A. Cooney, Jr.
A Provider Response, M. Gunnell
Chapter Fourteen: Stories of Shanti: Culture and Karma
Shanti’s Story, A. Z. Doorenbos
A Cultural Response, E. E. Chapleski
An Ethical Response, D. E. Gelfand
A Narrative Response, R. Raspa
Chapter Fifteen: Stories of Three Veterans: A Spectrum of Palliation
Three Veterans’ Stories, R. Zalenski
Richard’s Story
Moses’ Story
George’s Story
A Provider Response, J. W. Finn
A Family Response, T. Kovach
A Communication/Information Response, K. M. Meert
Chapter Sixteen: Boundaries and Bridges

Authors

Donald E. Gelfand, PhD, is a professor of sociology at Wayne State University, Detroit, Michigan, and Coordinator of the Wayne State University End-of-Life Interdisciplinary Project (WSU-EOLIP).

Richard Raspa, PhD, is a professor and graduate chair in the Department of Interdisciplinary Studies at Wayne State University, Detroit, Michigan.

Sherylyn H. Briller, PhD, is an assistant professor of Anthropology and faculty associate in the Institute of Gerontology at Wayne State University, Detroit, Michigan.

Stephanie Myers Schim, PhD, RN, APRN, CNAA, BC, is an assistant professor in the Wayne State University College of Nursing, Detroit, Michigan.

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